All parents old and new,
Over the last 5 months since In-FACT (Independant Fetal Anti Convulsant Trust) & The FACS Syndrome Association was founded (26th November 2012) by myself and Janet our campaign is now in its 3rd stage and 12 months ahead of the schedualed time table as set out by The Thalidomide Campaign Team.
So far in 5 months we have worked continuosly literally day and night whilst also getting on with life with our families and their needs.
26th March 2013 after our Westminster Hall Debate was debated in Parliament In-FACT were noted by Government as the National Campaign Team for Fetal Anti Convulsant Syndrome (FACS). This is where you as parents will pay a part of preparing for your childs future. Over the last few months we have had regular meeting with our mentors The Thalidomide Campaign Team. With their help and advice we have now set up a database of children/adults affected by the drug Epilim (Sodium Valproate) whilst their mother was pregnant. Due to being so far ahead of our scheduale we are encouraging those families and others affected to now get in touch and register with FSA and In-FACT who both work together. We have to stress that affected persons have to be registered on the database so that relevant information can be sent out with regards to any possibility of financial support for your affected child.
IT IS IMPERATIVE that you register your details with FSA & In-FACT within the next 8 WEEKS to enable us to ensure everyone is added to the database in ample time and to avoid any backlog.
Over the next 8 weeks as a Trust we have a number of meetings planned in which we intend to bring parents upto date with everything. Once registered you will receive a registration code for you and your family.
AT PRESENT YOUR CHILD DOESNT NECASERRILY NEED A DIAGNOSIS OF FACS SYNDROME, BUT KNOWLEDGE THAT MUM HAS TAKEN EPILIM IN PREGNANCY WILL BE NEEDED. HOWEVER THIS WILL BE DISCUSSED IN DUE COURSE.
ALL PERSONS HAVE TO BE BORN IN UK.
For contact details please visit : http://facsa.org.uk/