Feel so let down….. Anyone any ideas????

As a mum of 5 children of whom all have several disabilities, at the minute am feeling very very frustrated, angry and sad.  All my children as you know have the condition FACS SYNDROME and this ultimately leads onto the Autism spectrum.  This is proving so so difficult at the minute.  They all have different traits of it.

Luke in particular is quite bad…the slightest noise he is covering his ears, if his brother or sisters look at him, the noise coming from eating dinner will automatically set him off “on one”

Erin is very rigid and hyperactive.  She cant control the volume of her voice and is very loud, having to tell tell her to use her quite voice.  Her understanding of listening is very limited at times in which you have to maybe repeat yourself 3 or 4 times.

Lauren is your typical “clapping hands” and would happily sit for hours clapping.  In which she sings along to (mostly Bieber or The Wanted, One Direction) After a while you can tell her to stop but she reverts back to doing it.

Anyone whose children have Autism will understand this, so as you can imagine with a mix of hand-clapping, loud noise and tantrums its very difficult dealing with different degrees of Autism.  Being a nursery nurse I have done countless courses and fully understand all this and know signs and symptoms.  It is alright getting a diagnosis of this, but what next. There doesnt seem to be any help offered.  Ive done the typical “Webster Stratton Courses” and even when following these strategies through doesnt seem to help.

It is proving so difficult particularly on me and my hubby.  The frustration is just overwhelming and its getting to a point where I want to bloody scream .  I’m not Wonder woman, dealing with one Autistic child is hard alone but throwing 5 into the mix is so so difficult.  I have to try and seperate the children but really dont want to do this as they are brother and sisters.  I do have my health visitor coming in the next few days (of little help).

At the minute am just having a rant and trying to come up with a solution.  What that be I dont know, but I feel as though Drs and GPS are not giving the proper, full advice for parents with Autism.

.

Leave a Reply

Your email address will not be published. Required fields are marked *