Its 1;45 in the morning here, Erins just woke up crying asking for a drink. Ive settled her off to sleep and before I have a few hours sleep need to get Chloes tooth as Im being the tooth fairy. Her and Lauren are at the stage where they want to lose all their teeth cause they know when they lose one…the tooth fairy will arrive.  Anyway I started this blog to share my thoughts, feelings and give an insight to life with 5 children with disabilities.  Looking at the stats on my profile Ive had an overwhelming positive approach from people and Im absolutely astounded that with use of the web and technology FACS Syndrome is hardly known about. That IS going to change. I am absolutely determined that not just for my babies but for the thousands upon thousands it affects children GLOBALLY, that this will become recognised.  I want to thank you for visiting and supporting my blog.  A lot more pictures and information will be added in the next few weeks and I look forward to hopefully speaking and hearing your views. Goodnight everyone and have a fab day ahead of you x x x x x x x x x x x