23rd October – Sudep Awareness Day

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For the majority of people diagnosed with Epilepsy, SUDEP is a huge worry and fear. It certainly is for me. The thought of dying due to my epilepsy absolutely petrifies me so on SUDEP Awareness Day what better day to educate and keep the awareness of this going.

Before you read the facts, here are 2 stories of how SUDEP claimed the lives unexpectedly of loved ones.

Mark : My story is about my friend Julie Hamilton. She had just finished a course of therapy, her anxiety was so high at one point she could not leave her house. She gradually managed to adhere to the Neuropsychologist’s advice and ended up being able to do a day trip to Edinburgh Castle. A huge milestone for her.

All this aside, her Epilepsy was not controlled despite having brain surgery in 1998. She required on-going support from carers and home alarm systems. Despite her positive and fiery attitude to life, she passed to SUDEP on 28 November 2012, suffocating on a carrier bag after a violent grand mal seizure. She always reminded me of Dougal from Father Ted, always had me laughing

Tonianne : We lost our sister Samantha Jane to SUDEP 7 years ago. She’s was 19 year cartier bracelet
old and left a 1 year old baby behind .
She decided that having a bath was the perfect idea , And has she climbed in. She had a seizure
She slipped and banged her head on the bath with such force it chipped the bath and her teeth she somehow sat up before going unconscious and fell cartier double bracelet
backwards into the water has a result she drowned and passed away.

We always value her life and remember her has a happy, confident sarcastic, A good loving mum and a great sister and daughter.

Who liked to do anything without letting her illness bog her down.

 

What Is SUDEP?

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Sudden Unexpected Death in Epilepsy (SUDEP) is the term used when a person with epilepsy dies without warning and where the post-mortem fails to establish any other cause of death.
For some people living with epilepsy, the risk of Sudden Unexpected Death in Epilepsy (SUDEP) is an important concern. SUDEP refers to deaths in people with epilepsy that are not caused by injury, drowning, or other known causes.1 Studies cartier love bracelet suggest that each year there are about 1.16 cases of SUDEP for every 1,000 people with epilepsy, although estimates vary.

Risk factors for SUDEP
• Uncontrolled or frequent seizures
• Generalized convulsive (also called tonic-clonic or grand mal) seizures1
• Seizures that begin at a young age.
• Many years of living with epilepsy.
• Missed doses of medicine.
• Drinking alcohol.

 

Steps to reduce the risk of SUDEP

If you have epilepsy, ask your doctor to discuss the risk of SUDEP with you.
The first and most important step to reduce your risk of SUDEP is to take your seizure medicine as prescribed.
Other possible steps to reduce the risk of SUDEP may include
• Avoid seizure triggers, if these are known.
• Avoid drinking too much alcohol.
• Learn cartier jewelry review
how to better control your seizures with epilepsy self-management programs.
• Get enough sleep.
• Train adults in the house in seizure first aid.

e0bba9cd03b8183fe1cb00dda46b0d5dThank you to Mark and ToniAnne for sharing your stories

Women With Epilepsy ‘At Greater Risk Of Complications With Pregnancy’

A picture of a pregnant woman's abdomen, with her holding the top and bottom cartier jewelry review
 of her bump. Ref: www.dreamstime.com

A new study has added to the body of evidence demonstrating the increased health risks experienced by women with epilepsy.

Published in JAMA Neurology, the research from the Harvard TH Chan School of Public Health in Boston examined obstetric outcomes including maternal death, caesarean delivery, length of stay, preeclampsia, preterm labor and stillbirth cartier bracelets in a retrospective study of pregnant women identified through US hospitalisation records from 2007 to 2011.

Nearly 4.2 million delivery-related discharges were included in the study group, with 14,151 of these replica cartier love bracelets being women with epilepsy.Watch Full Movie Online Streaming Online and Download

It was observed that women with epilepsy had a risk of death during delivery of 80 mortalities cartier double bracelet
per 100,000 pregnancies – much higher than the ratio of six deaths in 100,000 pregnancies seen among women without epilepsy.

Although this data lacked information about the ultimate causes of death during delivery, the evidence indicated that women with epilepsy were at increased risk of a variety of adverse outcomes, including preeclampsia, preterm labour and stillbirth.

This patient group also generally required greater amounts of care, including an increased risk of caesarean delivery and prolonged hospital stay, regardless of delivery method.

The authors concluded: “Regardless of the specific cause, the point that women recorded as having epilepsy have an increased risk of mortality remains a clinically relevant message suggesting that increased attention should be paid. Future research is needed to determine the specific causes of mortality and how interventions might improve outcomes.”

However, they also pointed out the fact that the risk of a mother dying during delivery remains extremely low even among women with epilepsy.

Further research is now needed to understand the mechanisms underlying these risks in order to devise specific ways of minimising the issue and ensuring women with epilepsy are no longer subject to this danger

 

http://www.epilepsyresearch.org.uk/women-with-epilepsy-at-greater-risk-of-complications-with-pregnancy/

Study Offers New Insights Into AED/Autism Risk For Pregnant Women

Ultrasound scan of foetus

A new Australian study has provided clearer insights into the link between the use of antiepileptic drugs (AEDs) in pregnant women and the elevated risk of autism in their unborn children.

Conducted in partnership between the University of Birmingham and a number of Australian institutions, the prospective cohort study examined 105 children exposed to anticonvulsants during pregnancy in order to gain a better understanding of the true risks involved.

Each of the children were aged between six and eight years old and were recruited via the Australian Pregnancy Register for Women on Antiepileptic Medication. Maternal epilepsy, pregnancy and medical history data were obtained prospectively, while autism traits were assessed using the Childhood Autism Rating Scale (CARS).Watch movie online Get Out (2017)

According to results published in the medical journal Epilepsia, 11 children – or 10.5 per cent of the cohort – had elevated CARS scores, enough to indicate an increased rate of autism traits across the sample.

The most important determinant of association with autistic traits was higher doses of sodium valproate exposure – of the 11 patients affected, two had been exposed to valproate monotherapy, two to carbamazepine monotherapy and seven to valproate in polytherapy.

Linear regression analysis showed that the mean valproate dose during pregnancy was a significant predictor of CARS scores after controlling for polytherapy, mean carbamazepine dose, folic acid use, seizures during pregnancy, tobacco and marijuana use, maternal IQ and socioeconomic status.

First trimester folic acid supplementation and marijuana use were also significant predictors of CARS scores.

Additionally, the paper highlighted one potential way in which valproate could be incorporated into maternal epilepsy treatment in a less risky manner.

The researchers said: “The use of valproate in women who may become pregnant is now generally avoided; however, there is insufficient data regarding the risk of ASD with low-dose valproate.

“If this risk is no greater than with other AEDs, it may enable women with genetic generalised epilepsy to retain optimal seizure control, as well as minimise harm to their unborn child.”

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Pregnant mum’s benefits slashed when she misses appointment – because she had an epileptic fit

Stephanie Rigby, 24, missed an appointment with a Department for Work and Pensions (DWP) officer after having a fit – but they claim she never told them

A young mum has had her benefits slashed after suffering a seizure and missing an appointment.

Pregnant Stephanie Rigby, 24, missed a meeting with a Department for Work and Pensions (DWP) officer, after falling ill – and has had her payments cut.

Despite informing officers that she was unwell, Stephanie found her vital benefits were slashed.

Stephanie, from Hindley in Greater Manchester, said: “I have suffered from epilepsy for 20 years and had an attack on the day I was due to go for an ESA assessment. They make me very ill and I have to go to bed for most of the day to recover. They have happened more often recently because I’m pregnant.

“We informed DWP and were told we would need to provide a doctor’s note to explain why I missed it and that’s what we’ve done.”

Ross ParryBenefits: Stephanie Rigby at home with boyfriend Leon Roberts
But the DWP and agency Atos, which formerly dealt with Employment and Support Allowance cases, said they had no records of that conversation and said Stephanie had failed to provide any evidence for her claim.

Mum-of-one Stephanie, who is three-months-pregnant, said she had been treated with a lack of respect and felt “officers were laughing at her”.

She claims it was during a phone conversation about where to send the medical records that the comment about the recording of the seizure was made.

She said she did not know which official had been on the phone because he was “evasive” about his identity.

Ross ParryUpset: Stephanie says she was treated with a lack of respect and felt “officers were laughing at her”.
A spokesman for DWP said: “Ms Rigby failed to attend an assessment in March and provided no medical evidence to support the claim she was too ill to attend.

“She asked us to reconsider the decision to stop her ESA but did not provide any additional evidence. These decisions carry a further right of appeal and if any medical evidence can be produced it will be considered.”Watch Full Movie Online Streaming Online and Download

A spokesman for Atos said it was not part of their employees remit to make enquiries about missed assessments.Justice League Dark 2017 streaming

PAAppeal: The Department for Work and Pensions says Stephanie failed to provide medical evidence
Stephanie said she has now sent notes from her doctor via fax and expects her case to be reviewed.

She added: “I have not had my payments now for more than a month and they’re saying I can’t prove it, I feel like they’re laughing at me.”download full film iBoy 2017

 

Epileptic mother causes three vehicle crash

Newcastle court buildingsEpileptic mother causes three vehicle crash
Newcastle court buildingsPhoto:

A 39-year-old mother suffering from epilepsy caused a three vehicle smash when she suffered a fit behind the wheel of a car she should never have been driving.

Shelley Law, who had just a provisional licence, suffered a seizure after she took her boyfriend’s Peugeot without his permission to go on a shopping trip.

Newcastle Crown Court heard her vehicle smashed into a Citroen containing a family of four, who all suffered slight whiplash, including a two-year-old toddler who was left ‘scared, screaming in pain and in shock’.

Law’s vehicle then smashed into a gas works van, which was parked on the road with no driver inside.

All three vehicles were damaged in the smash at the junction of Lobley Hill Road and Queensway north in Gateshead last September.

The defendant’s errand had been shopping. That is why she got into the Peugeot 307 without permission.

The defendant was extremely open with police at the scene. She was first to say she had had an epileptic attack at the wheel and was also content to accept that that had caused it.

Knowing of her epilepsy is the aggravating feature. It is a unique feature in many ways.

It was epilepsy she knew about. Notwithstanding that, she got in the car without his permission, without his knowledge, without his consent and has had a fit at the wheel.

– PROSECUTOR NEIL JONES

The court heard Law had used the spare emergency key to drive the car, which had been parked on the couple’s drive.

Law, of Rose Street, Gateshead, admitted aggravated vehicle taking and driving with no licene or insurance.

The court heard she has held a provisional driving licence for over 20 years but has never sat a test and did not inform the DVLA of her epilepsy when it developed eight years ago.streaming Power Rangers 2017 film

Mr recorder Simon Phillips QC sentenced Law to six months imprisonment, suspended for 12 months with supervision and a two year road ban.

He said there was “no doubt” Law’s provisional licence would have been revoked if the authorities had known of her illness.

When you took it upon yourself to get into your partner’s car and drive it from your home address you did so knowing you were at risk of epileptic seizure.

There could have been fatalities.

It was a selfish act.

Your misconduct was dangerous and put other people at real risk in terms of their lives.

– MR RECORDER SIMON PHILLIPS QC

She has recklessly taken the car. Not in the sense of people taking cars, stealing them for joyriding, but for a genuine need to get some food.

She should have thought more about the risk because of her epilepsy.

She is exceedingly fearful today, she is shaking with fear, in a terrible state.

She is an absolutely broken lady.

She is a decent person who has made a stupid decision.

Further Evidence: Menstrual Cycle ‘Affects Seizure Frequency In Women With Epilepsy

A young woman looking to the side. Ref: www.dreamstime.com

A new US study has provided further evidence of the impact that the menstrual cycle can have on seizure patterns among women with epilepsy.trailer movie J. Cole: 4 Your Eyez Only 2017

The purpose of this research, led by the Harvard Neuroendocrine Unit, was to determine whether seizure frequency and cycle days with seizure occurrence vary across the menstrual cycle.

A total of 100 women with intractable focal onset seizures between the ages of 13 and 45 years were involved in the study, with each subject recording seizures and menstrual patterns during a three-month baseline phase.

It was found that seizure numbers and cycle days with seizure occurrence varied across the menstrual cycle, with an approximately twofold difference between the highest and lowest values for both seizure frequency and days with occurrence.

The researchers concluded: “The demonstration of variation in seizure frequency and cycle days with seizure occurrence across the menstrual cycle, as well as identification of specific days that have substantially higher or lower frequencies than other days, supports the existence of catamenial epilepsy.”

A term used to describe seizures that occur around the menstrual cycle, catamenial epilepsy is thought to be a common phenomenon, with around half of all women of childbearing age with epilepsy reporting an increase in seizures around the time of their periods.

New Study Sheds Further Light On Pregnancy Risks In Women With Epilepsy

Ultrasound image of a baby

A new study has provided fresh evidence of the heightened risk of foetal developmental problems affecting the children of women with epilepsy.

Led by researchers from Innlandet Hospital Trust in Norway, the study aimed to investigate intrauterine growth of foetuses in women with epilepsy, as compared with controls, and explore whether this growth was affected by prenatal exposure to antiepileptic drugs (AEDs).

Data was obtained from prospectively registered data regarding pregnancy and prenatal and perinatal factors in women in Oppland County in Norway, with the final analysis including information from 166 mothers with epilepsy and 287 children. These findings were compared to a control group consisting of 40,553 pregnancies in women without epilepsy registered in the same database.

According to results published in the medical journal Seizure, there was a significantly higher risk in the epilepsy group of infants being small for their gestational age (SGA), as well as being more likely to have a low score on the ponderal index, which calculates the relationship between mass and height as a measure of leanness.trailer film Split

Exposure to AEDs was shown to increase the risk, with the frequency of SGA and low ponderal index highest among infants exposed to the drug lamotrigine. In the AED group, head circumference was also revealed to be significantly smaller among babies whose mothers were treated with carbamazepine.

The researchers concluded: “The epilepsy group had a higher risk profile for having smaller babies, in being younger at age, lower in body weight and more frequent smokers. However, despite these differences, the effects of epilepsy and AED exposure were significant.

“The ponderal index may be a useful supplement to more established measures assessing intrauterine growth in epilepsy.”

These findings add to the growing body of evidence suggesting that remaining on AEDs during pregnancy can be risky for women with epilepsy, underlining the need for patients in this position to consult their doctors on the best course of action.

Medical safety alert Defect with Epilim/ sodium valproate gastro-resistant tablets – some batches have an odour

(Aventis Pharma Limited and Winthrop Pharmaceuticals UK Limited) The smell associated with some batches is said to be a result of the foil packaging, but patients should continue taking their medicine. (EL (15)A/02)

Product details

Aventis Pharma Limited

Epilim 200mg sastro-resistant Tablets, PL 04425/0302, Sanofi Livery

Batch number Expiry date Pack size First distributed
J601 Aug 2016 1 x 100 23 Oct 2014
J602 Aug 2016 1 x 100 12 Nov 2014
J603 Aug 2016 1 x 100 03 Dec 2014
K1 Jun 2017 1 x 100 29 Dec 2014
K2 Sep 2017 1 x 100 09 Jan 2015
K3 Sep 2017 1 x 100 06 Feb 2015
K7 Sep 2017 1 x 100 05 Jan 2015

Epilim 500mg Gastro-resistant Tablets, PL 04425/0303, Sanofi Livery

Batch number Expiry date Pack size First distributed
J602 Aug 2016 1 x 100 19 Dec 2014
J603 Aug 2016 1 x 100 06 Jan 2015
K1 Jun 2017 1 x 100 22 Jan 2015
K2 Jun 2017 1 x 100 06 Feb 2015

Winthrop Pharmaceuticals UK Limited

Sodium Valproate Zentiva 200mg Gastro-resistant Tablets, PL 17780/0453, Zentiva Livery

Batch number Expiry date Pack size First distributed
K1 Jun 2017 1 x 100 02 Oct 2014

Sodium Valproate Zentiva 500mg Gastro-resistant Tablets, PL 17780/0454, Zentiva Livery

Batch number Expiry date Pack size First distributed
J601 Aug 2016 1 x 100 01 Oct 2014

Download documents

Drug alert: Epilim 200/ 500mg gastro-resistant tablets/ sodium valproate zentiva 200mg/500mg – smell with foil packaging

Epileptic woman filmed by laughing strangers as she suffered seizure

A WOMAN was left distraught when she woke from an epileptic fit to find two men filming her.

Maggie O'ConnorORDEAL: Maggie was filmed by two men who mocked her as she suffered an epileptic fit [EASTNEWS]

Maggie O’Connor, 26, was out her dog Dillon when she suffered a seizure.

She came round from the fit to see to strange men standing over her laughing as they filmed.

One of the men took a close up of Maggie’s face before they both ran off because her dog began growling at them laughing and shouting “she f****** p***** herself, ha.”

Maggie O'Connor and her dog DillonDETERRENT: Maggie with her dog Dillon who growled and saw off the two men [EASTNEWS]

Many passers by witnessed the incident in the grounds of St Botolph’s Priory, Colchester, Essex, but nobody stopped to help.

Maggie said: “With a seizure, you can wet yourself and bite your tongue and these were the two facts that they seemed to find most hilarious as I had wet myself and I had down my front.

“I could hear them saying ‘look at her face I can’t believe she’s p**d herself – she’s all wet’”

Maggie O’Connor

“They continued filming whilst I was awake and conscious but because of the seizure I was in a really vulnerable .

“There was nothing I could do – my legs were too jelly to move and I could not string a phentermine proper sentence together. So I just had to sit there whilst they tried to humiliate me by videoing me.

“I could hear them saying ‘look at her face I can’t believe she’s p**d herself – she’s all wet.’

“Looking back I feel really cross but at the time I was too to feel anything. It scares me to think what they would have done if my dog wasn’t there.”

Maggie wrote about the incident on Facebook in an to find the two men, the status has been shared over 3000 times on the social networking site.streaming Get Out movie

However will not be pursuing the duo because “no criminal offence has been committed.”